Xangsane
Walking sick sick they walking the town
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- Jun 11, 2021
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- #51
Just read this on ALSforums regarding someone who complained about BFS a decade ago:
ALS starts in a single part of the spine and the lower motor neurons that hook up there. Your calves, fingers, and tongue aren't even in the same neighborhood as each other from a spine level perspective. What that tells us is that you do have benign fasciculations, and given the consuming anxiety you mentioned, probably BFS. BFS commonly causes great anxiety. There's no shame in that, a lot of people have dealt with this before you.
Unfortunately, for most people just learning the anatomy behind ALS and why they don't seem to have it isn't as helpful as it would seem. The anxiety itself becomes the real enemy. If you find yourself obsessively reading about neurological diseases, grasping at straws, thinking you and you alone have this weird new disease onset, those are signs of this very damaging health anxiety. Most people in this boat eventually get an EMG and it comes up clean. Even that, however, does not quiet the anxiety, it merely redirects it. Now they start looking for things that don't show up on an EMG. They often go through phases of concentrating their fear on other diseases. It is this fear itself that is life damaging, and it builds on itself. The anxiety and stress make their own mysterious symptoms that only make the doc's job harder.
I tell you this because if you find your thoughts are working this way, you NEED to get help, insurance or no. You need someone objective who can help with the anxiety, someone that you can trust. You may need to put some decisions in their hands, because in that situation your perspective will become flawed. If you have a very sensible spouse or sibling, ask them if your legs look like they are working correctly, and have them tell you when they aren't and you need to see a doc about it.
What you can do right now is to stop researching neurological diseases, and concentrate your focus on other things in your life. Get help for the anxiety. If you at some point find yourself with a symptom that is causing difficulty in your life, that someone else can see, by all means at least go to one doc visit to have them tell you what they think. Having BFS doesn't make you immune to other problems.
I say this quite seriously - being diagnosed with ALS causes people to spend money and go on vacations while they still can. Living in obsessive fear of ALS destroys marriages, loses jobs, and causes people to hide in their home while PALS on vents are taking powerchair walks in the park. Don't let the fear win.
Please help: ALS fear consuming my life
Hi all, I am new to this forum and am very grateful there is a space like this. First of all my thoughts go out to anyone suffering from this disease. Until recently I didn't even know it existed. I was wondering if anyone can comment on any of my symptoms. I am between jobs so have no...
www.alsforums.com
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