Bewusst
dead inside
- Joined
- Aug 11, 2019
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December 16, 2020 was when it all started. It was the last time I had botox. I had several sessions before with no problems but my last treatment rendered me incredibly sick. Instead of paralyzing only my forehead (frontalis muscle) as intended, it somehow made its way into systemic circulation and weakened my whole body, especially my diaphragm and legs. In the first two months, I was permanently short of breath, even at rest. Thought I was gonna suffocate because my diaphragm was so weak I could hardly inhale. Called an ambulance twice. It's been 5 1/2 months and I still can't breathe properly. I haven't been able to take a normal full breath since getting ill. When I overexert my muscles/walk too much, my legs are like jelly for 2-3 days afterwards. I was almost unable to walk for a while. My vision was blurred for several months, which has only recently started to slowly get better. I couldn't see distant objects, watching TV or reading street signs was nearly impossible. I lost a bunch of weight, both muscle and fat, which appears to be coming back. I was constantly cold, had heart palpitations, ringing in the ears, a dry mouth, couldn't talk and swallow well and had poor muscle coordination. My skin looked like it had no collagen. I also had episodes of what felt like derealization and problems remembering things. This isn't the complete list.
Many of the symptoms have at least improved, some have disappeared but not all of them and I'm still far from how I was before. The remaining symptoms fluctuate a lot, depending on both unknown factors and my diet, water intake, weather, how active I am, stress levels and sleep. I'm in touch with other iatrogenic botulism sufferers and what I learnt was that the vast majority is ill for a very long time (often several years), many never recover completely and some also developed other diseases.
Many of the symptoms have at least improved, some have disappeared but not all of them and I'm still far from how I was before. The remaining symptoms fluctuate a lot, depending on both unknown factors and my diet, water intake, weather, how active I am, stress levels and sleep. I'm in touch with other iatrogenic botulism sufferers and what I learnt was that the vast majority is ill for a very long time (often several years), many never recover completely and some also developed other diseases.